Becoming a Disabled Parent: Eliminating Access Barriers to Health Care Before, During, and After Pregnancy Article
Date of Publication:
Recommended Citation
Robyn Powell et al., Becoming a Disabled Parent: Eliminating Access Barriers to Health Care Before, During, and After Pregnancy, 96 Tul. L. Rev. 369 (2022)Clicking on the button will copy the full recommended citation.
The desire to become a parent transcends all identities—including disability. Despite federal disability rights laws, a nascent body of scholarship indicates that parents with disabilities experience substantial and pervasive inequities. Although legal scholars have extensively examined the discrimination that disabled people encounter while parents, there is scant legal scholarship critically evaluating, or even acknowledging, the impediments that people with disabilities experience throughout the process of becoming parents. In particular, legal scholarship has not adequately examined legal and policy barriers that may hinder people with disabilities’ access to health care before, during, and after pregnancy.
This study, conducted in accordance with established methodological practices from the social sciences, responds to this scholarly void and is the first to provide concrete data about the barriers that parents with disabilities experience when accessing health care before, during, and after pregnancy. This study draws original empirical data from qualitative interviews with thirty-eight parents with disabilities. Three themes emerged from the data indicating barriers to health care. First, physical barriers, specifically architectural barriers and inaccessible medical diagnostic equipment, impede parents with disabilities’ access to health care. Second, communication barriers contribute to inaccessible health care for parents with disabilities. Third, programmatic barriers, namely a paucity of policies and procedures about caring for parents with disabilities, negative attitudes, and lack of knowledge among health care providers’, result in health inequities for disabled parents. The Article concludes by discussing potential legal and policy implications of the findings and identifies critical areas for future research.